Rare Disease UK is the national campaign for people with rare diseases and all who support them. It is run by Genetic Alliance UK, the national charity working to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions.
Since 2009, Rare Disease UK has campaigned for the development and implementation of an effective strategy for rare diseases in the UK and believe that patients affected by rare disease should receive the high quality services, treatment and support they need.
Rare Disease UK is a registered charity (no. 1114195).