Rare Disease UK (RDUK)

Type of service:
Advice And Information
Genetic Alliance UK, SWAN UK, 3rd Floor, 86-90 Paul Street, Hackney, London EC2A 4NE
Telephone number:
0207 831 0883
Email address:
Service description:

Rare Disease UK is the national campaign for people with rare diseases and all who support them. It is run by Genetic Alliance UK, the national charity working to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions.

Since 2009, Rare Disease UK has campaigned for the development and implementation of an effective strategy for rare diseases in the UK and believe that patients affected by rare disease should receive the high quality services, treatment and support they need.

Rare Disease UK is a registered charity (no. 1114195).

Related Documents:

Age range:
0 - 99 years
Eligibility criteria:
  • Open to everyone
Referral route:
  • Contact service direct
  • No referral needed
Last updated on: