The Huntington’s Disease Association (HDA) is a membership organisation. It aims to improve care and support services for people with Huntington's disease, educate families and professionals, and champion people's rights.
Specialist Huntington’s Disease Advisory Service
The Specialist Huntington’s Disease Advisor (SHDA) for Northamptonshire is called Sue Tompkins. She can be reached on 01295 279970 or sue.tompkins@hda.org.uk.
Juvenile Huntington’s Disease
If a person develops symptoms before the age of 20, this is known as Juvenile Huntington’s disease (JHD). The Huntington’s Disease Association's specialist JHD adviser is called Helen Santini. She can be reached on 01279 507656 or helen.santini@hda.org.uk.
The Huntington’s Disease Association is a registered charity (no. 296453).