Huntington's Disease Association

Type of service:
Forums And Support Networks
Suite 24, Liverpool Science Park IC1, 131 Mount Pleasant, Liverpool, Merseyside L3 5TF
Telephone number:
0151 331 5444
Email address:
Service description:

The Huntington’s Disease Association (HDA) is a membership organisation. It aims to improve care and support services for people with Huntington's disease, educate families and professionals, and champion people's rights.

Specialist Huntington’s Disease Advisory Service 
The Specialist Huntington’s Disease Advisor (SHDA) for Northamptonshire is called Sue Tompkins. She can be reached on 01295 279970 or

Juvenile Huntington’s Disease
If a person develops symptoms before the age of 20, this is known as Juvenile Huntington’s disease (JHD). The Huntington’s Disease Association's specialist JHD adviser is called Helen Santini. She can be reached on 01279 507656 or

The Huntington’s Disease Association is a registered charity (no. 296453).

Age range:
0 - 99 years
Eligibility criteria:
  • Open to everyone
Referral route:
  • Contact service direct
  • No referral needed
Last updated on: