Ehlers-Danlos Support UK

Type of service:
Forums And Support Networks
PO Box 748, Borehamwood, Hertfordshire WD6 9HU
Telephone number:
0800 907 8518
Email address:
Service description:
The Ehlers-Danlos syndromes (EDS) are a group of 13 individual genetic conditions, all of which affect the body’s connective tissue. Ehlers-Danlos Support UK provides information, advice, and support to people living with EDS. They run regular events, produce literature to increase awareness, and work with the medical community to promote treatments and improve diagnosis. Registered charity no. 1157027.
Age range:
0 - 99 years
Eligibility criteria:
  • Open to everyone
Referral route:
  • Contact service direct
  • No referral needed
Last updated on: