Syndromes Without a Name (SWAN) UK

Type of service:
Forums And Support Networks
Genetic Alliance UK, 3rd Floor, 86-90 Paul Street, Hackney, London EC2A 4NE
Telephone number:
0207 831 0883
Email address:
Service description:

SWAN UK (Syndromes Without a Name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.

Social Media:

If you would like to be kept up-to-date with the work of SWAN UK, you can subscribe to their newsletter.

Genetic Alliance UK is a registered charity (no. 1114195).

Related Documents:

Age range:
0 - 25 years
Eligibility criteria:
  • Open to everyone
Referral route:
  • Contact service direct
  • No referral needed
Last updated on: