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Forums And Support Networks
Genetic Alliance UK, 3rd Floor, 86-90 Paul Street, Hackney, London EC2A 4NE
SWAN UK (Syndromes Without a Name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.
If you would like to be kept up-to-date with the work of SWAN UK, you can subscribe to their newsletter.
Genetic Alliance UK is a registered charity (no. 1114195).
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