Paediatric Cystic Fibrosis (CF) Service - NGHNT

Type of service:
Health Services
Address:
Northampton General Hospital NHS Trust, Cliftonville, Northampton, Northamptonshire NN1 5BD
Telephone number:
01604 634700
Email address:
Service description:

The CF Service looks after children aged 0-18 years with cystic fibrosis (CF) in the community. 

The service works very closely with the CF Multi-Disciplinary Team (MDT), which includes a paediatric consultant, a physiotherapist, a dietician, and a psychologist. It also works with the Oxford Children's Cystic Fibrosis Network (OCCFN).

The CF service includes:

  • Visiting children at home to assess their clinical conditions.
  • Performing clinical procedures for children in their own homes (such as inserting continuous glucose monitoring sensors).
  • Initiating new drug therapies at home (such as Pulmozyme / hypertonic saline).
  • Providing advice and support by phone, text, email, or face-to-face.
  • Supporting children and families when having intravenous (IV) antibiotics at home.
  • Providing care for the children who have a portacath, which is a central venous access device (CVAD).
  • Assessing children when they have a wet cough. This involves obtaining a cough swab/sputum. Treatment can be oral, nebulised, or IV antibiotics, or a combination of these.
  • Starting children with CF on anti-pseudomonas treatment as soon as possible after it has been isolated on a cough swab/sputum.
  • Monitoring lung function when children have a cough (to assess the success of any treatment undertaken).
  • End-of-life care if necessary.
  • Teaching all involved about all aspects of the daily care children with CF need to keep them as healthy as possible (this includes schools, nurseries, and after-school clubs).
  • Providing specialist nursing expertise to all involved in the care of children with CF (this may take place in a community setting or in a hospital).
Cost:
Free
Age range:
0 - 18 years
Eligibility criteria:
  • Health
Referral route:
  • G.P or health referral
Last updated on:
21/11/2022
Location map: