The CF Service looks after children aged 0-18 years with cystic fibrosis (CF) in the community.
The service works very closely with the CF Multi-Disciplinary Team (MDT), which includes a paediatric consultant, a physiotherapist, a dietician, and a psychologist. It also works with the Oxford Children's Cystic Fibrosis Network (OCCFN).
The CF service includes:
- Visiting children at home to assess their clinical conditions.
- Performing clinical procedures for children in their own homes (such as inserting continuous glucose monitoring sensors).
- Initiating new drug therapies at home (such as Pulmozyme / hypertonic saline).
- Providing advice and support by phone, text, email, or face-to-face.
- Supporting children and families when having intravenous (IV) antibiotics at home.
- Providing care for the children who have a portacath, which is a central venous access device (CVAD).
- Assessing children when they have a wet cough. This involves obtaining a cough swab/sputum. Treatment can be oral, nebulised, or IV antibiotics, or a combination of these.
- Starting children with CF on anti-pseudomonas treatment as soon as possible after it has been isolated on a cough swab/sputum.
- Monitoring lung function when children have a cough (to assess the success of any treatment undertaken).
- End-of-life care if necessary.
- Teaching all involved about all aspects of the daily care children with CF need to keep them as healthy as possible (this includes schools, nurseries, and after-school clubs).
- Providing specialist nursing expertise to all involved in the care of children with CF (this may take place in a community setting or in a hospital).